Biology of Osteosarcoma (BOOST) Registry and Biobank

Zach Sobiech

Because I want to be remembered as a kid who went down fighting, and didn’t really lose.

Osteosarcoma researcher

Because our goal is to find ways to predict osteosarcoma, catch it early and someday prevent it from occurring at all.

Because Zach brought us together.

Because we can all help carry the baton.

The BOOST Registry and Biobank offers a single location where every patient with osteosarcoma and their relatives can participate in research.

Get involved

One of the keys to understanding osteosarcoma incidence and survival is the ability to include large numbers of patients and their families from around the world.


This team has expertise in human and animal genetics, tumor biology, immunology, clinical trials and bioinformatics.

Upon finding out he only had a year to live, Zach Sobiech turned to music in a big way.

A fund in Zach's honor directs proceeds from his music and other fundraisers to help researchers find better treatments to prevent and cure osteosarcoma.

Osteosarcoma patients diagnosed at any age are invited to: 

  • Enroll in the BOOST registry
  • Provide a DNA sample via mail
  • Answer questions about themselves

Affiliated organizations

Rein in Sarcoma logo

Zach Sobiech