Masonic Cancer Center, University of Minnesota
View slide presentations from the event:
About 100 cancer survivors and their families and friends attended the first Living After Cancer session. U of M experts gave presentations and answered questions about common problems encountered by survivors after treatment.
Julie Ross, Ph.D., who leads the Cancer Center's research on causes and prevention of cancer, spoke about cancer trends in the United States, major findings of the Childhood Cancer Survivor Study, and common health issues for cancer survivors. Ross emphasized the importance of using the research of childhood cancer as a model for researching adult cancer. Adults need access to clinical trials, she said, and physicians, institutions and hospitals need to coordinate in researching adult cancer.
Daniel Mulrooney, M.D., who sees survivors of pediatric cancer in the Cancer Center's Long-Term Follow-Up Clinic, spoke about specific physical complications faced by cancer survivors, including cancer recurrence, a second cancer, and compromised cardiovascular and endocrine systems.
Mulrooney said that beyond the physical effects, it's important to recognize mental health and social issues survivors can face: anxiety, depression, social withdrawal, feelings of loss, difficulty re-entering school or the workplace, and difficulty applying for insurance after being treated for cancer.
While the long-term complications of surviving cancer may seem troubling, "knowledge is power," said Mulrooney. He recommended the following Web resources for cancer survivors:
For childhood cancer survivors:
For adult cancer survivors:
This program featured a panel of cancer survivors discussing the challenges they have encountered and the choices they have made in their life after cancer.
Moderator:
Ruth Bachman, member of the University of Minnesota Cancer Center's Community Advisory Board; survivor, soft tissue sarcoma
Panel Members:
Christopher Bohen, M.A., English literature, storyteller; survivor, childhood cancer (lymphoma) and bladder cancer as an adult
Laura Devereaux, M.A.I.R., vice president, Minnesota Ovarian Cancer Alliance; survivor, ovarian cancer
Joanne Disch, Ph.D., director, The Densford Center, University of Minnesota School of Nursing; survivor, breast cancer
Paul Leland , CPA, member of Advocates for Colorectal Education (ACE); survivor, rectal cancer